5^th seminar on the Ethics of Research with Indigenous Peoples

SUZY BASILE

Suzy Basile comes from the Atikamekw community of Wemotaci and is a professor at the School of Indigenous Studies of Université du Québec en Abitibi-Témiscamingue (UQAT). In 2017, she set up the Research Laboratory on Indigenous Women’s Issues – Mikwatisiw. Since January 2020, she has held the Canada Research Chair in Indigenous Women Issues. And since June 2016, she has been a member of UQAT’s Research Ethics Board (REB).

Dr. Basile was involved in the development of the First Nations in Quebec and Labrador’s Research Protocol (2005, 2014). She developed the Guidelines for Research with Aboriginal Women for the Quebec Native Women’s Association published in 2012. She has also published and co-edited a number of works and papers on the ethics of research with Indigenous peoples. She actively participated in the creation of the Toolbox of Research Principles in an Aboriginal Context: Ethics, Respect, Fairness, Reciprocity, Collaboration and Culture published in 2014 (1^st edition), 2018 (2^nd edition) and 2021 (3^rd edition).

NANCY WISCUTIE-CRÉPEAU

Nancy Wiscutie-Crépeau is an assistant professor at the Institut national de la recherche scientifique (INRS). She completed her doctoral studies at the Faculty of Education of the University of Ottawa. Her training and life path have led her to take an interest in the place of Indigenous languages, cultures and knowledge in education. Her research work is in line with a decolonization perspective.

JULIE LISE SIMARD

Julie Lise Simard completed her master’s degree in information science at l’École de bibliothéconomie et des sciences de l’information (School of Library and Information Science) of Université de Montréal in 2022 and is currently pursuing her doctoral studies at the same institution. She has been working closely with Minwashin since 2021 and serves as an archivist and project manager for their Nipakanatik virtual library project. Her research interests focus on equity, diversity, inclusion and decolonization in documentary media and archival practices.

DARIO IZAGUIRRE

Born in Honduras, Dario Izaguirre is a graduate in history from Universidad Nacional Autónoma de Honduras. His interest in archaeology emerged in the 1980s, when he took part in excavations at the Mayan site of Copán. Residing in Quebec since 1993, Mr. Izaguirre obtained a master’s degree in anthropology at Université de Montréal in 1997. Since 1995, he has been involved in several archaeological sites across Quebec and was a member of the team of archaeologists at Québec’s Ministère de la Culture et des Communications. From 2003 to 2019, Mr. Izaguirre worked full-time as an archaeologist with the Cree Nation Government (CNG). As part of his work for this organization, Mr. Izaguirre contributed, as team leader and assistant to the project coordinator, to the planning and carrying out of inventories and archaeological excavations at Eastmain-1, Eastmain-1-A and Sarcelle hydroelectric power plants, and to several other projects involving collaborative archaeology. Since 2019, Mr. Izaguirre has been part of the Aanischaaukamikw Cree Cultural Institute team. He was entrusted with the management of archaeological collections, advising CNG departments in matters of archaeology and managing excavation sites.

GERTHIE CHACHAI

A teacher by training, Gerthie Chachai first worked in the general management of the early childhood centre of Opitciwan. She set up the 4-year-old kindergarten program jointly with the band council’s education department, of which she is currently director. She manages the elementary and secondary education programs in the community and administers a post-secondary student support program. Holder of a specialized graduate diploma in school administration (DESS) from Université du Québec à Chicoutimi, she applies the knowledge gained from her training in her work in the community, with a view to maintain the Atikamekw language and culture and develop educational programs for the well-being of young people in Opitciwan.

SYLVAIN PAQUETTE

Full professor at the school of urban planning and landscape architecture and holder of the Chaire en paysage et environnement de l’Université de Montréal (CPEUM - Research Chair in Landscape and Environment) at Université de Montréal, Sylvain Paquette is also in charge of the master’s program in land use planning, city, territory and landscape elective. His work focuses on landscape sociology and addresses the issue of landscape as a phenomenon of social and cultural enhancement of inhabited territories in urban, suburban and rural areas. His research has been published in many journals, at both the national (Canadian Geographer, Canadian Journal of Regional Science, Sociographic Research) and international (Landscape and Urban Planning, Landscape Research, Journal of Rural Studies) levels. His contributions have helped to renew landscape study and land use planning approaches, both in terms of conceptual frameworks and methodological perspectives and ensuing landscape management strategies and tools.

ANNE ARDOUIN

Anne Ardouin has led numerous projects through research design, participatory research and cultural mediation approaches focusing on the connections between human beings and their environments, their landscapes, their imaginary worlds. Her interest lies in the development of knowledge-sharing platforms that combine images, stories and maps. She has been working jointly with the Opitciwan community since 1995 and, since 2019, she has overseen its E itaskweak project. She has also taught plastic arts at the Mikisiw high school during the COVID-19 pandemic. She holds a Ph.D. from the Faculté de l’aménagement (faculty of land use planning) at Université de Montréal and a master’s degree in visual arts from Concordia University.

SÉBASTIEN BRODEUR-GIRARD

Sébastien Brodeur-Girard is a member of the Barreau du Québec and a professor at the School of Indigenous Studies of Université du Québec en Abitibi-Témiscamingue (UQAT), where he teaches Indigenous law among other subjects. He has a Ph.D. in history from École des Hautes Études en Sciences Sociales (School of Advanced Studies in the Social Sciences) and he has worked for several years in this field. He was co-director of research in the Public Inquiry Commission on relations between Indigenous Peoples and certain public services in Québec: listening, reconciliation and progress (Commission Viens).

CAROLE LÉVESQUE

Carole Lévesque is a trained anthropologist and a professor at the Institut national de la recherche scientifique (INRS). Over her 50-year career, she has worked closely with Indigenous communities, organizations and authorities in Quebec. She has tested and developed several forms of collaborative research and co-construction of knowledge with the First Nations and Inuit in Quebec and carried out numerous field research projects both within territorial and urban Indigenous communities. In 2001, she founded the Indigenous Peoples research and knowledge network (DIALOG), which received the Impact Connection Award from the Social Sciences and Humanities Research Council of Canada in 2021.

KARINE GENTELET

Karine Gentelet is an associate professor in the department of social sciences at Université du Québec en Outaouais and the 2020 – 2022 holder of the Visiting Professor’s Chair in Social Justice and Artificial Intelligence (Fondation Abeona - École normale supérieure (ENS) - OBVIA). Her research interests and publications focus on the use of digital technologies and artificial intelligence to improve social justice, the recognition of Indigenous Peoples’ rights, the ethics of research in Indigenous matters and the social responsibility of researchers.

ANNABELLE CUMYN

Annabelle Cumyn is a professor in the faculty of medicine and health sciences at Université de Sherbrooke. She is an internist specialized in obstetric medicine and she holds a master’s degree in health education. She was chair of the research ethics committee for the CIUSSS de l’Estrie—CHUS from 2013 to 2022. Since 2018, Annabelle Cumyn has served as a member of the Interagency Advisory Panel on Research Ethics of the three federal research agencies of Canada (SSHRC, CIHR, NSERC). She participated in the Fonds de recherche du Québec working group on research ethics and artificial intelligence research issues and in the social acceptability working group on the secondary use of health data. Since 2017, she has been exploring with her colleagues how individuals can be informed about the secondary use of health data for research and consent to such purposes.

JEAN-FRANÇOIS ETHIER

A clinician researcher and an associate professor in the departments of medicine and computer science at Université de Sherbrooke, Dr. Jean-François Ethier is the director of the Interdisciplinary Center for Research in Health Informatics (CIRIUS - Centre interdisciplinaire de recherche en informatique de la santé) at Université de Sherbrooke and scientific co-director of the Interdisciplinary Research Group in Health Informatics (GRIIS).

Professor Ethier’s work focuses on learning health systems, more specifically, on health data access methods, research systems and clinical decision-making support tools involving patients. His work includes ethical and legal aspects, such as meta-consent. He develops theoretical approaches and practical tools so that information and research systems can communicate with each other. These solutions enable the flow of information between science and clinical practice. They drive health research, while supporting health professionals and patients who make many health-related decisions every day.

AARON FRANKS

In May 2018, Aaron Franks joined the First Nations Information Governance Centre (FNIGC) and is the Centre’s current Senior Advisor of External Relations and Strategic Initiatives. After his first career as an actor, he completed an M.A. in Social Justice and Equity Studies at Brock University and obtained a Ph.D. in Human Geography from the University of Glasgow, Scotland. He then worked with the Centre for Environmental Health Equity (CEHE) at the University of Manitoba and Queen’s University, the Centre for Indigenous Research Creation at Queen’s, SSHRC and Universities Canada. Now he proudly supports a small team dedicated to education, training, applied research and knowledge translation on the First Nations Principles of OCAP®, information governance and First Nations data sovereignty at FNIGC.

Originally from Edmonton located in Treaty Six territory, Aaron is of mixed British, Northern European and Métis descent with roots in the historic Anglo-Métis communities of St. Andrews in Manitoba and Birch Hills, in Saskatchewan. He is a member of the Manitoba Métis Federation and lives on unceded Algonquin territory in Ottawa with his wife Rebecca, their children Casper and Gil, and their dog Archie.

EMMANUELLE PIEDBOEUF

Emmanuelle Piedboeuf is a doctoral student at the School of Indigenous studies of the Université du Québec en Abitibi-Témiscamingue and coordinator of the Indigenous Peoples research and knowledge network (DIALOG). She has worked closely with Indigenous organizations and communities for seven years on issues including the mobilization, production and transmission of Indigenous knowledge. Her doctoral research interest relates to the development of Indigenous capacities in research.

IONA RADU

Ioana Radu is a professor at the School of Indigenous Studies of Université du Québec en Abitibi-Témiscamingue (UQAT) and a member of DIALOG—Indigenous Peoples research and knowledge network at the Institut national de la recherche scientifique (INRS). For more than 15 years, Ioana has worked closely with Indigenous communities and organizations in Quebec on priority issues in Indigenous health and well-being, knowledge mobilization, territoriality and governance, along with decoloniality and social justice.